The New Zealand government mandate stipulates that certain industries require vaccination in order to retain employment. Although we have advised MoH that this is not as simple for those people with ME/CFS (pwME) who are affected by this Order, we have not been able to change their decision through our…
Understanding your rights – unpaid carers Carers Rights Day – Thurs 25th NovemberWhy being aware of your rights is so important.In a recent survey of nearly 6,000 carers, the Carers Trust found: Four in five unpaid carers are... News | WAMES (Working for ME in Wales) | Welsh Association of ME…
November 23, 2021 Over 1,000 people have now voted for their M.E./CFS research priorities. People with M.E./CFS, carers and clinicians are all asked to take part. The M.E./CFS Priority Setting Partnership… This post first appeared on Action for M.E. Read more >>
Hi, everyone! It’s Jaime, the Director of Scientific & Medical Outreach at #MEAction. During this week’s #MEAction Giving Adventure we swam through the Research Lagoon as we surpassed our second fundraising level of US $20,000/UK￡14,820. While our fundraising format this year is fun and lighthearted, the work #MEAction is doing…
Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians in the UK are all asked to take part. The ME/CFS Priority Setting Partnership is particularly looking for more people from ethnic minorities, carers and health care professionals to take part. So far:…
On Tuesday 30th November at 5pm, #MEAction UK are holding a community Q&A, and will be joined by two of the NICE committee members who have spent almost 3 years working on the new ME/CFS guideline. The post Chat to NICE ME/CFS guideline committee members appeared first on #MEAction Network.…
November 15, 2021 The next All-Party Parliamentary Group (APPG) meeting for M.E. will take place Wednesday 24th November between 2pm-3pm. The meeting will focus on the new National Institute for Health… This post first appeared on Action for M.E. Read more >>
My Neuro survey 2021 People living with neurological conditions across the UK are being asked to take part in the largest neurological survey to help improve vital services and support. Anybody, of any age, with a neurological condition or suspected neurological condition in England, Scotland, Wales and Northern Ireland can…
At the request of the ME/CFS community, ANZMES has issued a survey relating to reactions experienced by the community to the COVID-19 Pfizer BioNTech vaccine. ANZMES also sought to ascertain prevalence of Long COVID and COVID-19 infection in the community. The opportunity was also utilised for respondents to express interest…
The next meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG on ME) will take place from 2 – 3 pm on 24 November 2021. Email your MP asking them to attend, and help to ensure the new ME/CFS guideline is implemented. Find their contact details at: https://members.parliament.uk/FindYourMP This…