Petition: Fund research into any relationship between microclots & long Covid & ME A private petition to the UK Government highlights apparent similarities between long COVID and ME/CFS, and requests research, not just support, into diagnosis, treatment and protocols for both conditions... News | WAMES (Working for ME in Wales)…
January 21, 2022 In September 2021 we announced our decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders of both charities.… This post first appeared on action for M.E. Read more >>
January 20, 2022 We were honoured to see Scottish actor Mark Bonnar appear on ITV’s popular game show Celebrity Catchphrase playing for Action for M.E last weekend. Mark is known for his roles as Max… This post first appeared on Action for M.E. Read more >>
#MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular…
What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms. It’s no exaggeration to say that 2020 and 2021 changed the world –…
Neuro Voices Wales – Support Groups The Wales Neurological Alliance invites anyone with a neurological condition, including ME & FM, to attend one of the new neuro support groups... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
Last year was, by all accounts, a doozy. The nation endured a spate of tornadoes, fires, floods and, of course… News and Research – American ME and CFS Society Read More
In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls. A recent survey conducted by our You + ME Registry found that the health... This post first appeared on Solve M.E. Read More
ME/Research priority workshops The ME/CFS Priority Setting Partnership (PSP) is holding 3 final workshops to decide the top 10 ME/CFS research priorities. Apply to take part by January 11 2022. When and where? The workshops will take place on Zoom: Saturday 5th March 1.00pm – 2.30pmThursday 10th March 5.30pm -7.00pmFriday…
Dear friend, With an onslaught of Covid-19 cases from the Omicron variant looming, identifying treatments for Long Covid has become even more imperative. Since the beginning of the pandemic,... This post appeared first on Solve ME. Read More