Will the World Health Organization’s long COVID definition help or hinder?

The World ME Alliance has written to the World Health Organization (WHO) concerning their recently published definition of "post COVID-19 condition", commonly known as long COVID. While we commend the work undertaken to ensure people with long COVID are receiving a diagnostic label and subsequent support we remain concerned that…

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Read about the research happening on ME and long COVID

#MEAction summarized the scientific talks about ME/CFS and Long COVID presented at the International Association of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFS/ME) Conference that took place last August.  We sent this summary of those talks to our database of journalists reporting on Long COVID this past October to underscore…

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In case You missed it!: Fall Roundup

Wow! So much has happened in the last three months. Between the historic change to the National Institute for Health and Care Excellence (NICE) guideline on ME, terrific articles featured in the press, the tedious work of holding US federal agencies accountable, the effort to enhance clinical care, the continued…

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Fibromiàlgia i pressupostos Generals de l’Estat 2022

Tenim nova informació sobre les gestions que hem estat fent-i continuarem fent- al Congreso de los Diputados, en relació a la inclusió de dues ... (We have new information on the steps we have been taking - and will continue to take - in the Congress of Deputies, in relation…

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Tell your Doctor that GET is gone

The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the message…

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Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare

WAMES asks NHS Wales:  Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare Poor healthcare for many with ME/CFS in Wales. A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: few GPs admit being aware of the guidelines and those who…

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NICE ME/CFS guideline – doctors’ leaders reject ‘evidence based’ change

NICE 2021 ME/CFS guideline –  Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative. On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are pleased with the change in direction it has... News | WAMES…

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