CDC decides not to publish flawed ME/CFS treatments review!

As we enter the holidays we have a positive development to report coming out of yesterday’s ME/CFS stakeholder call with the U.S. Centers for Disease Control and Prevention (CDC). CDC has announced that it will not publish a systematic evidence review of ME/CFS treatments by the Oregon Health Science University…

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Apply to join the UK’s ME/CFS priority setting workshops

Through three stages of participation, this process is aiming to define the top ten research priorities for people affected by this disease.    The process now has just one more step – and you could be part of it.   These …This post appeared first on #MEAction Network. Read More

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#MEAction Arrives in the Medieval Town of Med-Ed

Here’s a hearty hello from the Medieval Town of Medical Education!  Lords and Ladies,  We did it!… we got over $75,000 (£56,781) which means we have arrived at this new land on our Giving Adventure Map. I’m Laurie Jones, the Managering Elf, and I am going to tell you what…

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NICE Committee Member Community Call Review

Two NICE ME/CFS guideline committee members joined #MEAction for a community call, to provide their insight into the guideline process and answer questions. Adam Lowe is a person with ME and has been supporter of various ME organisations, including #MEAction UK and Science for ME. He was one of five…

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New Matching Challenge: Triple Your Donation!

Incredible news! Thanks to the generosity of a first-time donor, we are so thrilled to announce a new matching challenge. This donor has a passion for our Solve M.E. research... The post New Matching Challenge: Triple Your Donation! appeared first on Solve ME/CFS Initiative. Read More

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CDC must act now to stop flawed review of ME/CFS treatments

In advance of next week’s CDC ME/CFS Stakeholder Engagement and Communication (SEC) call, #MEAction has sent a letter to Chronic Viral Diseases Branch Chief Dr. Elizabeth Unger requesting her to clearly and directly address our four key objections to publishing a flawed evidence review of ME/CFS treatments that CDC commissioned.…

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