The 2022 Board Of Directors Recruitment Campaign – #MEAction

In the spirit of giving and giving back this holiday season, we’re excited to launch our #MEAction 2022 Board of Directors Recruitment Campaign! If you are curious about Board Service or want to use your skills to help a growing nonprofit or know someone who would be a great Board…

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Raise funds for WAMES by shopping with an Amazon smile!

You shop. Amazon gives, with a smile.  Choose WAMES! AmazonSmile is the same Amazon you know. Same products, same prices, same service. Shop at smile.amazon.co.uk and they will donate to your favourite charitable organisation, at no cost to you. Go to... News | WAMES (Working for ME in Wales) | Welsh Association…

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New Black British support group seeks members with ME and Long Covid

Darren Randon, co-founder of Well Versed Ink, is seeking new members for an online group for UK-based Black and Black-mixed adults living with diagnosed or suspected ME or Long-Covid. Formal diagnosis is not required. The group meets every other Sunday from 1-2pm. It provides a safe space to share experiences…

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Fibromiàlgia i Pressupostos de la Generalitat 2022

The amendments to the text of the Budget of the Generalitat de Catalunya have been published today. As you may know, as we did in the Congress of Deputies, we had addressed all the parliamentary groups in the Parliament of Catalonia, in order to request that there be two budget…

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Entrevista al programa “Tot es Mou” de TV3 ( 30/11/2021)

As we reported last November 25, the Congress of Deputies approved an amendment to the General State Budget. Well, TV3's "Tot es Mou" program gave him the opportunity to explain it briefly to his audience. You can see the intervention we did by... This post first appeared on Plataforma Familiars.…

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NPR Features #MEAction in Series about Long COVID

NPR featured #MEAction in an article about long COVID called, “For patients with long COVID, chronic fatigue syndrome may offer a guiding star.”  MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, speaks about how long COVID researchers and doctors must learn from the ME/CFS community. “People with chronic complex…

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