We were deeply saddened to learn of the recent passing of Dr. Ron Tompkins, MD, ScD, chief medical officer at Open Medicine Foundation (OMF). Tompkins is remembered as a gifted scientist and doctor, a compassionate... This post appeared first on Solve ME/CFS Initiative. Read More
#MEAction is excited to launch an all-new educational feature – Facets of ME! We will be diving into the multiple facets of ME/CFS including symptoms, comorbidities, practical tips, and more. Our goal is to take the first Friday of each month and delve into one particular facet of ME in…
Researchers at the University of the West of Scotland (UWS) are undertaking research into ME and long COVID, and are looking for members of the ME community to be involved in the development. The researchers are currently undertaking several studies related to long COVID, including symptom tracking and heart rate…
Dear friend, This week, Representatives Ayanna Pressley and Don Beyer authored a letter to Centers of Disease Control and Prevention (CDC) Director Dr. Rochelle Walenksy asking the CDC to make... This post appeared first on Solve ME/CFS Initiative. Read More
NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What…
A landmark study published in Science found Epstein-Barr virus (EBV) as the leading cause of Multiple Sclerosis (MS). Given the already-established connection between EBV and ME/CFS, this study may have... This post appeared first on Solve ME/CFS Initiative. Read More
Bonne nouvelle : le guide de l’INESSS a été retiré pour mise à jour. Good news: the INESSS guide has been withdrawn for updating... This post first appeared on AQEM. Read More
February 01, 2022 We have now completed our merger with The ME Trust and from Tuesday 1 February 2022 will be offering Healthcare Services in addition to our Information, Support & Advocacy Services.… This post first appeared on Action for M.E. Read more >>
As you know, Adriane Tillman, has been working extremely hard, alongside her team of volunteers to get featured in the press and she has tapped into a new audience with her latest press hit in Infection Control Today’s article, “Long COVID Shouldn’t Have Taken Us by Surprise”, by Frank Diamond.…
ME/CFS IN EARLY TV DISCOURSE: QUESTIONING GOVERNMENTAL POLICIES AND CHALLENGING THE CONCEPTIONS OF DISEASE AND MEDICINE by Giada Da Ros As patients who suffer from it well know, myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a life-altering, debilitating, chronic, systemic disease that frequently and dramatically limits the activities of…