Wow! So much has happened in the last three months. Between the historic change to the National Institute for Health and Care Excellence (NICE) guideline on ME, terrific articles featured in the press, the tedious work of holding US federal agencies accountable, the effort to enhance clinical care, the continued…
Tenim nova informació sobre les gestions que hem estat fent-i continuarem fent- al Congreso de los Diputados, en relació a la inclusió de dues ... (We have new information on the steps we have been taking - and will continue to take - in the Congress of Deputies, in relation…
The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the message…
November 08, 2021 The Teachers Educational Supplement (TES) are the leading outlet for providing content, support, and resources for teachers throughout the United Kingdom at the start of their career,… This post first appeared on Action for M.E. Read more >>
November 09, 2021 To shine a light on the difference in M.E. experiences, we want to invite you to describe your experience of the disease for a new art project. The responses will be collated by Alec… This post first appeared on Action for M.E. Read more >>
WAMES asks NHS Wales: Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare Poor healthcare for many with ME/CFS in Wales. A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: few GPs admit being aware of the guidelines and those who…
NICE 2021 ME/CFS guideline – Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative. On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are pleased with the change in direction it has... News | WAMES…
In Germany, there is virtually no medical care for ME/CFS patients and to date there is no government funding for … News and Research – American ME and CFS Society Read More
November 03, 2021 On 17 September 2021, the Action for M.E. board announced a decision to merge with The ME Trust following a thorough review of the potential benefits to people with ME started in June,… Read more >>
Media coverage of the publication of the new NICE guideline in the UK was impressive in its geographical spread and range of publications who reported on the story. The volume of articles shows the importance of the new guideline and highlights the increased awareness of the issues amongst the UK…