Solve ME’s Strategic Commitment, Critical Initiatives and Growing Team

Dear Solve community members, As summer evolves into autumn, I write to share news about our continuing evolution and growth. In the last several months, we deepened our strategic commitment to identifying diagnostics and treatments for people with ME/CFS and Long Covid, sharpened our focus on translational research, made significant…

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Acte sobre COVID persistent i Síndromes de Sensibilització Central

El pròxim 4 de novembre podrem escoltar diverses ponències sobre les qüestions que sorgeixen al voltant dels efectes de les infeccions postvíriques. Creiem que pot ser d’interès escoltar el que els experts poden aportar. RESERVA’T LA DATA 4 de novembre de 2021 Punt de vista Familiars de persones afectades... Read…

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The Clinical Treatment Act is Delivering Results

After three years of advocacy, Solve M.E. scored a concrete legislative victory with the passage of The Clinical Treatment Act. This covers clinical trial costs for qualifying 74.8M Medicaid participants — including ME/CFS patients — and provides resources for ME/CFS clinical trials. Lowering the costs and barriers for participation in clinical…

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Choose your top ten ME/CFS research priorities – UK survey launched

Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based…

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Statement from Forward-ME on NICE Roundtable

After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline…

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Experts talk COVID-19 vaccine for people with ME/CFS

ANZMES asks experts for their recommendations on whether people with ME/CFS (pwME/CFS) should get the COVID-19 vaccine or not. Dr. Ros Vallings, Howick Health & Medical Centre: COVID-19 can be a severe and debilitating disease which... This post first appeared on ANZMES. Read More

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