Darren Randon, co-founder of Well Versed Ink, is seeking new members for an online group for UK-based Black and Black-mixed adults living with diagnosed or suspected ME or Long-Covid. Formal diagnosis is not required. The group meets every other Sunday from 1-2pm. It provides a safe space to share experiences…
The amendments to the text of the Budget of the Generalitat de Catalunya have been published today. As you may know, as we did in the Congress of Deputies, we had addressed all the parliamentary groups in the Parliament of Catalonia, in order to request that there be two budget…
On November 17, 2021, the AQEM scientific committee was able to meet some of the representatives of the working committee for the development of care for people with long-term COVID at the National Institute of Excellence in Health and Social Services (INESSS ). During the meeting, we told them of…
Welcome to #MEAction’s 12 Days of Pacing! For the next 12 days will work through what #StopRestPace really means and how to apply it practically in your life. We are excited to share some great tips from our amazing community along the way. We hope you will view this ……
As we reported last November 25, the Congress of Deputies approved an amendment to the General State Budget. Well, TV3's "Tot es Mou" program gave him the opportunity to explain it briefly to his audience. You can see the intervention we did by... This post first appeared on Plataforma Familiars.…
We are delighted to welcome actor Jennie Jacques as an Action for M.E. Ambassador. Jennie Jacques is a British actor who came to fame in the drama Desperate Romantics, which aired… This post first appeared on Action for M.E. Read more >>
NPR featured #MEAction in an article about long COVID called, “For patients with long COVID, chronic fatigue syndrome may offer a guiding star.” MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, speaks about how long COVID researchers and doctors must learn from the ME/CFS community. “People with chronic complex…
Welcome to the jungle, the press jungle! It’s hot and noisy here, with news fresh off the press. Trying to get the attention of the media is not as impossible as legend had it! This is Adriane, and as your Press Scribe, I’m here to write our way through this…
Nominate Action for M.E. in the My Favourite Voucher Codes Charity Poll this December and help us win 20% of the company’s profits! We are excited to announce that we are taking part… This post first appeared on Action for M.E. Read more >>
The New Zealand government mandate stipulates that certain industries require vaccination in order to retain employment. Although we have advised MoH that this is not as simple for those people with ME/CFS (pwME) who are affected by this Order, we have not been able to change their decision through our…