Covid and ME/CFS
Announcement: AMMES has recently added an informational page about COVID-19 and ME/CFS. The page includes physicians’ recommendations regarding the COVID … News and Research – American ME and CFS Society Read More
Raise funds for WAMES by shopping with an Amazon smile!
You shop. Amazon gives, with a smile. Choose WAMES! AmazonSmile is the same Amazon you know. Same products, same prices, same service. Shop at smile.amazon.co.uk and they will donate to your favourite charitable organisation, at no cost to you. Go to... News | WAMES (Working for ME in Wales) | Welsh Association…
New Black British support group seeks members with ME and Long Covid
Darren Randon, co-founder of Well Versed Ink, is seeking new members for an online group for UK-based Black and Black-mixed adults living with diagnosed or suspected ME or Long-Covid. Formal diagnosis is not required. The group meets every other Sunday from 1-2pm. It provides a safe space to share experiences…
Fibromiàlgia i Pressupostos de la Generalitat 2022
The amendments to the text of the Budget of the Generalitat de Catalunya have been published today. As you may know, as we did in the Congress of Deputies, we had addressed all the parliamentary groups in the Parliament of Catalonia, in order to request that there be two budget…
L’AQEM rencontre l’INESSS.
On November 17, 2021, the AQEM scientific committee was able to meet some of the representatives of the working committee for the development of care for people with long-term COVID at the National Institute of Excellence in Health and Social Services (INESSS ). During the meeting, we told them of…
12 Days of Pacing Begins Today!
Welcome to #MEAction’s 12 Days of Pacing! For the next 12 days will work through what #StopRestPace really means and how to apply it practically in your life. We are excited to share some great tips from our amazing community along the way. We hope you will view this ……
Entrevista al programa “Tot es Mou” de TV3 ( 30/11/2021)
As we reported last November 25, the Congress of Deputies approved an amendment to the General State Budget. Well, TV3's "Tot es Mou" program gave him the opportunity to explain it briefly to his audience. You can see the intervention we did by... This post first appeared on Plataforma Familiars.…
Action for M.E.’s new ambassador – Jennie Jacques
We are delighted to welcome actor Jennie Jacques as an Action for M.E. Ambassador. Jennie Jacques is a British actor who came to fame in the drama Desperate Romantics, which aired… This post first appeared on Action for M.E. Read more >>
NPR Features #MEAction in Series about Long COVID
NPR featured #MEAction in an article about long COVID called, “For patients with long COVID, chronic fatigue syndrome may offer a guiding star.” MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, speaks about how long COVID researchers and doctors must learn from the ME/CFS community. “People with chronic complex…
#MEAction Swinging Through The Press Jungle
Welcome to the jungle, the press jungle! It’s hot and noisy here, with news fresh off the press. Trying to get the attention of the media is not as impossible as legend had it! This is Adriane, and as your Press Scribe, I’m here to write our way through this…
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