November 09, 2021 To shine a light on the difference in M.E. experiences, we want to invite you to describe your experience of the disease for a new art project. The responses will be collated by Alec… This post first appeared on Action for M.E. Read more >>
WAMES asks NHS Wales: Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare Poor healthcare for many with ME/CFS in Wales. A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: few GPs admit being aware of the guidelines and those who…
NICE 2021 ME/CFS guideline – Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative. On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are pleased with the change in direction it has... News | WAMES…
In Germany, there is virtually no medical care for ME/CFS patients and to date there is no government funding for … News and Research – American ME and CFS Society Read More
November 03, 2021 On 17 September 2021, the Action for M.E. board announced a decision to merge with The ME Trust following a thorough review of the potential benefits to people with ME started in June,… Read more >>
Media coverage of the publication of the new NICE guideline in the UK was impressive in its geographical spread and range of publications who reported on the story. The volume of articles shows the importance of the new guideline and highlights the increased awareness of the issues amongst the UK…
A team of ME/CFS advocates have launched a petition to raise awareness about the dire situation in Germany. Help Germany get to 50,000 signatures by Tuesday, Nov. 9th and they will be granted a public hearing in the German Bundestag to finally draw attention to the issue of ME/CFS . …
NICE ME/CFS guidelineCautious welcome from WAMES & the ME community WAMES welcomes the publication of the 2021 NICE guideline for ME/CFS and the decision by NICE to ‘follow the science’ regarding... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
After 3 years of hard work by an independent guideline committee, the new ME/CFS guideline, published by the National Institute for Health and Care Excellence (NICE), contains major improvements. Work must now take place to ensure this guideline is implemented accurately and with people with ME at the heart of…
A petition to the German Bundestag is gaining increasing numbers of signatures. But it still needs your help. Sign for ME/CFS If they can reach 50,000 signatures by the 9th November they will automatically be granted a public hearing with the German Bundestag. To sign you must complete three steps:…