Be part of M.E. Research
October 25, 2021 The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance,… Read more >>
Statement from Forward-ME on NICE Roundtable
After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline…
Clinician patient support confirmed for new NICE guideline
October 22, 2021 Statement from Forward-ME: On Monday, Forward-ME and member charities attended a round table to review the new ‘NICE guideline on ME/CFS’ with representatives from NICE and clinical… Read more >>
Experts talk COVID-19 vaccine for people with ME/CFS
ANZMES asks experts for their recommendations on whether people with ME/CFS (pwME/CFS) should get the COVID-19 vaccine or not. Dr. Ros Vallings, Howick Health & Medical Centre: COVID-19 can be a severe and debilitating disease which... This post first appeared on ANZMES. Read More
ANZMES Long COVID + vaccination survey
We have received many queries from our membership about COVID-19 Pfizer vaccination effects for people with ME/CFS in New Zealand. To answer these questions confidently and comprehensively we decided to create a self-report survey which asks you about your experience with the vaccine. Whether you’ve experienced mild, moderate, severe, or…
ANZMES sponsors NZ Long COVID + ME research
One of the primary objectives of ANZMES (Associated New Zealand Myalgic Encephalomyelitis Society) is to further the cause of ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) through the promotion and funding of research into the disease. The global COVID-19 (SARS-CoV-2) pandemic has changed the way... This post first appeared on ANZMES. Read…
NICE will announce guideline decision next week
NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE will publish the guideline following a meeting of its Guidance…
Why We Support The COVID-19 and Pandemic Response Centers of Excellence Act and the COVID-19 Long Haulers Act
Your advocacy efforts are creating historic opportunities for federal funding of research and ME/CFS education. Two particular pieces of proposed legislation have great potential and I wanted to share my thoughts on each of them Solve M.E. is proud to support The COVID-19 and Pandemic Response Centers of Excellence Act…
Is NIH blowing another opportunity to advance ME/CFS research?
Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH…
“The treatment of ME has been Dickensian” – NICE’s roundtable on the ME/CFS guideline
After NICE's roundtable, Janet Sylvester tells us: “I felt this was a positive meeting. There were large areas of agreement from all attendees, including all acknowledging the terrible experiences people with ME have had to endure. Together, the representatives from ME patient organisations were able to strongly get across the…
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