An Evolving Landscape: Long Covid’s Impact on ME/CFS

It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time... The post An Evolving Landscape: Long Covid’s Impact on ME/CFS appeared first on Solve ME/CFS Initiative.... Read More >>

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Millions Missing France joins the World ME Alliance

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we build a stronger ME community together. Millions Missing France was founded in 2018, and has since grown to become a…

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La luminothérapie et le changement de saison

La luminothérapie, ça mange quoi en hiver? La luminothérapie consiste à s’exposer à de la lumière artificielle projetée par une lampe (qui n’émet aucun rayon UV) un certain nombre de minutes par jour, afin de simuler les heures d’ensoleillement habituelles en été et au printemps. Rien de plus simple :…

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Solve M.E. Engages New Community Partners Through Lived Experience Taskforce (LET)

Building on our commitment to centering the crucial voices from our community in the leadership and decision-making at Solve M.E., we are transforming our Community Advisory Council (2019 – 2022) into our new Lived Experienced Task Force (LET) launching in 2023.  The Lived Experience Task Force (LET) will serve as…

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Portrait de l’ergothérapeute Mélanie Kasner

Nous avons le privilège de collaborer avec Mélanie Kasner sur plusieurs projets depuis les derniers mois. Nous souhaitions vous la présenter davantage en quelques lignes. Mélanie a complété son baccalauréat en kinésiologie avec cheminement honorifique à l’Université McGill en 2011. Puis, elle a obtenu sa maitrise en ergothérapie à l’Université…

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Take Action Virtually with our White House Protest

On Thursday, December 1st, World AIDS Day, HIV/AIDS, ME/CFS and Long COVID activists are taking action at the White House to demand funding for critical global and domestic health measures to keep our communities safe. Here is how you can join us virtually... The post Take Action Virtually with our…

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Qu’est-ce que le POTS (syndrome de tachycardie orthostatique posturale)?

Le syndrome de tachycardie orthostatique posturale est un trouble multisystémique chronique dont le symptôme cardinal est une tachycardie orthostatique. Appelé Postural Orthostatic Tachycardia Syndrome en anglais, les termes POTS ou STOP sont fréquemment utilisés. Quels sont les symptômes? Le principal symptôme du POTS est l’augmentation anormale du pouls (sans chute…

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12ME doneert 10.000 euro aan OMF

Op dinsdag 29 november, ‘Giving Tuesday’, doneren we 10.000 euro aan de Amerikaanse ngo Open Medicine Foundation (OMF). Hiermee willen we het wetenschappelijk onderzoek naar myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) ondersteunen in de hoop dat er zo een effectieve behandeling voor deze invaliderende ziekte gevonden wordt. Dit is de grootste ……

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Could you be our new Communications Volunteer in 2023? Apply today.

We’re looking for a new volunteer to support the World ME Alliance in growing our social media presence and helping with our website. Are you looking for something new and exciting to do in 2023? Apply now The World ME Alliance is a unique coalition of ME organisations from around…

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On World AIDS Day, We’re Taking Action at the White House

MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an important day of action. We’ve teamed up with the amazing and dedicated activists at Health GAP, ACT UP, Treatment Action…

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