On 11th July, a new article was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts these suggestions. Our 24 member organisations are coordinating a global response to this study to demonstrate, on…
We are delighted to announce that the World ME Alliance has expanded its new resource, "Involving people with ME and energy limiting conditions" to include German and Italian translations, alongside the original English and French versions. This comprehensive guide is designed to promote the involvement of individuals who have Myalgic…
The World ME Alliance, a global coalition of organisations advocating for those affected by Myalgic Encephalomyelitis (ME), is proud to announce the release of a new guide. This comprehensive resource, titled "Involving People with ME and Other Energy Limiting Conditions," aims to promote inclusivity and empower individuals facing these debilitating…
ME/CFS Israel, a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), has achieved remarkable milestones within just a year since its foundation. As the newest member of the World ME Alliance, ME/CFS Israel has made significant strides in combatting misinformation, fostering relationships…
We are thrilled to announce the newest member of the World ME Alliance: Neúnavní. This Czech charity is dedicated to supporting individuals living with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neunavní has been at the forefront of raising awareness, providing resources, and advocating for better care and understanding of…
Myalgic Encephalomyelitis (ME) is a debilitating and complex condition that affects millions of people across the globe. On May 12th, World ME Day is observed to raise awareness of this chronic illness, and to advocate for the millions of people who live with it. The disease where pushing harder can…
World ME Day takes place on May 12th to raise awareness of myalgic encephalomyelitis (ME), a debilitating and often misunderstood illness. This year, organizations from around the world have come together to host events and activities to support those living with ME and promote understanding and action on a global…
Final call-to-action for World ME Day 2023. Follow Holly's example and tell the world what happens when pushing harder makes you sicker for World ME Day. https://youtu.be/EWrA7_zvf8U ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects millions of people worldwide. One of the most debilitating symptoms of ME is…
Share the reality of how pushing harder can make you sicker. The WOrld ME Alliance and it's members are calling on all people with ME and carers to demonstrate the reality of living with ME for World ME Day 2023. Let's make post-exertional malaise visible. When it comes to ME,…
We are excited to announce the launch of our new factsheet on myalgic encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in four languages, we hope this resource will help build a basic understanding of ME across borders. Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome…