Across the globe for World ME Day 2024

We are reporting on the advocacy, actions, campaigns and events of our member organizations and others across the globe for World ME Day 2024. Brilliant initiatives were held to make a difference on a local and global scale. Demonstrations, lobbying, art and education events were organized across six continents! Learn…

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“Building a community saved my life” – Daniela, Mexico

Name: Daniela Herrera Villarreal Pronouns: she/her Age: 38 Home: Mexico City Sick for: 6 years I have a genetic syndrome, Charcot Marie Tooth, whose symptoms worsened after two simultaneous infections, one in the throat and another digestive. Before, my symptoms were manageable. After the infections, weakness and extreme fatigue set…

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32 organizations call for future pandemic preparedness to address infection-associated chronic conditions

Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…

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Millions Missing Mexico joins the World ME Alliance as first member from Latin America

We are thrilled to announce that Millions Missing Mexico, a voluntary organisation dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and supporting patients, has joined the World ME Alliance as its 22nd member and the first member from Latin America. Millions Missing Mexico was founded in 2018 by a group…

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Millions Missing Mexico

Member Millions Missing Mexico is a voluntary organisation dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and supporting people with the disease in Mexico. The organisation was founded in 2018 by a group of people with ME and their caregivers who were frustrated by the lack of knowledge and resources…

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