On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that persons with disabilities have the right to the highest attainable standard of health as those without disabilities. It demonstrates that…
As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending our global reach as we build a stronger ME community together, and supporting the Japan ME Association in its activities.…
Member Japan ME Association (JMEA) is a non-profit organisation based in Tokyo, Japan. Their mission is to help create a society where persons with ME are able to receive effective medical care and social security, and where they can live in hope of returning to their healthy lives. They have…
It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time... The post An Evolving Landscape: Long Covid’s Impact on ME/CFS appeared first on Solve ME/CFS Initiative.... Read More >>
With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we build a stronger ME community together. Millions Missing France was founded in 2018, and has since grown to become a…
Member Millions Missing France is a voluntary, non-hierarchical organisation based in Auvergne. The team behind this organisation advocate for people with ME across France. Founded in 2018 they are led by a college of six members all of whom have personal experience of ME. This personal experience, including experience of…
La luminothérapie, ça mange quoi en hiver? La luminothérapie consiste à s’exposer à de la lumière artificielle projetée par une lampe (qui n’émet aucun rayon UV) un certain nombre de minutes par jour, afin de simuler les heures d’ensoleillement habituelles en été et au printemps. Rien de plus simple :…
Building on our commitment to centering the crucial voices from our community in the leadership and decision-making at Solve M.E., we are transforming our Community Advisory Council (2019 – 2022) into our new Lived Experienced Task Force (LET) launching in 2023. The Lived Experience Task Force (LET) will serve as…
Nous avons le privilège de collaborer avec Mélanie Kasner sur plusieurs projets depuis les derniers mois. Nous souhaitions vous la présenter davantage en quelques lignes. Mélanie a complété son baccalauréat en kinésiologie avec cheminement honorifique à l’Université McGill en 2011. Puis, elle a obtenu sa maitrise en ergothérapie à l’Université…
Le syndrome de tachycardie orthostatique posturale est un trouble multisystémique chronique dont le symptôme cardinal est une tachycardie orthostatique. Appelé Postural Orthostatic Tachycardia Syndrome en anglais, les termes POTS ou STOP sont fréquemment utilisés. Quels sont les symptômes? Le principal symptôme du POTS est l’augmentation anormale du pouls (sans chute…