NICE guideline is robust and globally supported

On 11th July, a new article was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts these suggestions. Our 24 member organisations are coordinating a global response to this study to demonstrate, on…

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Expanding Access: Guide to Involvement Now Available in German and Italian

We are delighted to announce that the World ME Alliance has expanded its new resource, "Involving people with ME and energy limiting conditions" to include German and Italian translations, alongside the original English and French versions. This comprehensive guide is designed to promote the involvement of individuals who have Myalgic…

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World ME Alliance Launches a New Guide: Involving People with ME and Other Energy Limiting Conditions

The World ME Alliance, a global coalition of organisations advocating for those affected by Myalgic Encephalomyelitis (ME), is proud to announce the release of a new guide. This comprehensive resource, titled "Involving People with ME and Other Energy Limiting Conditions," aims to promote inclusivity and empower individuals facing these debilitating…

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ME/CFS Israel

Member ME/CFS Israel is a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Israel. They grew organically through social media, building community among people with ME and recognising the opportunity for collective action. With a high-quality website and growing partnerships within…

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ME/CFS Israel joins the World ME Alliance

ME/CFS Israel, a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), has achieved remarkable milestones within just a year since its foundation. As the newest member of the World ME Alliance, ME/CFS Israel has made significant strides in combatting misinformation, fostering relationships…

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Neúnavní

Member Neúnavní is a charity supporting individuals with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neúnavní provides crucial support services, through free therapy to support individuals learning to live with the disease and monthly community calls. They also work to raise awareness about ME, to dispel myths and promote understanding.…

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Neúnavní joins the World ME Alliance to represent the Czech Republic

We are thrilled to announce the newest member of the World ME Alliance: Neúnavní. This Czech charity is dedicated to supporting individuals living with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neunavní has been at the forefront of raising awareness, providing resources, and advocating for better care and understanding of…

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Global Advocacy Leaders Speak Out on Post-Exertional Malaise for World ME Day

Myalgic Encephalomyelitis (ME) is a debilitating and complex condition that affects millions of people across the globe. On May 12th, World ME Day is observed to raise awareness of this chronic illness, and to advocate for the millions of people who live with it. The disease where pushing harder can…

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Around the world for World ME Day 2023!

World ME Day takes place on May 12th to raise awareness of myalgic encephalomyelitis (ME), a debilitating and often misunderstood illness. This year, organizations from around the world have come together to host events and activities to support those living with ME and promote understanding and action on a global…

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Video yourself for World ME Day!

Final call-to-action for World ME Day 2023. Follow Holly's example and tell the world what happens when pushing harder makes you sicker for World ME Day. https://youtu.be/EWrA7_zvf8U ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects millions of people worldwide. One of the most debilitating symptoms of ME is…

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