Elevating stories of the #MillionsMissing to HHS leadership

#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our government to do more to meet the needs of people with ME, and to ensure that the evolving Long COVID…

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#MEAction Presents: Not Going Quietly Screening & Panel

We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video: We…

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Charli Arcouette, notre porte-parole sera panéliste à une conférence des IRCM pour l’encéphalomyélite myalgique

Notre porte-parole, Charli Arcouette, participera à un panel de discussion dans le cadre d'une conférence donnée par les Instituts de recherches cliniques de Montréal (IRCM) sur les maladies mal comprises. Elle sera aux côtés de la Dre Émilia Falcone, du Dr Amir Khadir et de Jérémie Meier-Sénéchal (AQML)... Our spokesperson,…

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Ask Congress to TREAT & CARE for Post-Infection Diseases During Advocacy Month

Advocacy Month is an opportunity to share the policy solutions vital to address the growing number of individuals suffering from ME/CFS and Long Covid.  ME/CFS devastated the lives of an... This post appeared first on Solve ME/CFS Initiative Read More

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WMEA campaign film: Tell us what the world can #LearnFromME?

On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can the world #LearnFromME?” The world must listen to people with ME in order to #LearnFromME. Help us make a campaign…

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European ME Coalition joins the World ME Alliance

We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME in this important international setting. Founded in 2018 by a group of patients and carers, they have engaged thousands as…

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Un article dans le Montreal Gazette sur le lien entre l’encéphalomyélite myalgique et la COVID longue

L’AQEM est fière d’avoir collaboré à un article exposant le lien entre l’encéphalomyélite myalgique et la COVID longue durée, paru dans le journal Montreal Gazette le 3 avril 2022... AQEM is proud to have collaborated on an article exposing the link between myalgic encephalomyelitis and long-term COVID, published in the Montreal…

Continue ReadingUn article dans le Montreal Gazette sur le lien entre l’encéphalomyélite myalgique et la COVID longue