ME/CFS On TV (Part 2)

“THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL REPRESENTATIONS OF ME/CFS by Giada Da Ros Sociologists emphasize the importance of social and cultural representation of social and cultural representation of chronic and emerging disease, both for individual and collective behavior. “(T)he fact that people are able to…

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Solve M.E. Board Member and Person with Long Covid Cynthia Adinig Speaks At Covid-19 Memorial Event

The following speech was delivered by Solve M.E. Board Member and person with Long Covid, Cynthia Adinig, during a Covid-19 memorial event hosted by Rami’s Heart Memorial and COVID-19 Hope... This post appeared first on Solve ME/CFS Initiative. Read More

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Welsh Neuro Support Groups in March 2022

Neuro Support Groups – #LlaisNiwro Join these Wales Neurological Alliance zoom groups during March to meet others living with and supporting neurological conditions. The group meeting times with links to the Facebook groups are as follows... News | WAMES (Working for ME in Wales) | Welsh Association of ME &…

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Join Action for M.E.’s online Breaking Isolation three-part workshop

Funded by BBC Children in Need, our Breaking Isolation project - which began in 2020 - brings together a steering group to design and deliver a series of isolation-busting workshops… This post appeared first on Action for M.E. Read more >>

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L’AQEM rencontre le CHUM pour la future clinique des maladies complexes chroniques

Au cours des mois de novembre et décembre 2021, l’AQEM a pu rencontrer le CHUM au sujet de la future clinique de diagnostic des maladies complexes chroniques (qui inclura l’encéphalomyélite myalgique)... During the months of November and December 2021, AQEM was able to meet with the CHUM (University of Montreal…

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Solve M.E. Calls For Congressional Action After Budget Delays Thwart ME/CFS Research Centers

The National Institutes of Health (NIH) recently published a long-expected request for applications (RFA) for the Collaborative Research Centers (CRCs) for ME/CFS, announcing that the funding levels for the centers... This post appeared first on Solve ME/CFS Initiative. Read More

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You can Still Help Madeline!

“Madeline” is a woman who has been suffering with a post viral syndrome for 40 years which includes Severe Myalgic Encephalomyelitis (ME) and fibromyalgia. Madeline  lives in British Columbia, Canada and she urgently needs your help. There is a need to seek alternative medical treatments due to the lack of…

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Join Action for M.E.’s online self-advocacy workshop

You are invited to join us for a Self-Advocacy workshop online via Zoom live on Friday 18th March 2022 12:30 pm-2:30 pm hosted by our team of Advocacy officers. The workshops will centre around 'Accessing social care in England'. We welcome people with M.E. or those affected by M.E., whether…

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