ME/CFS IN EARLY TV DISCOURSE: QUESTIONING GOVERNMENTAL POLICIES AND CHALLENGING THE CONCEPTIONS OF DISEASE AND MEDICINE by Giada Da Ros As patients who suffer from it well know, myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a life-altering, debilitating, chronic, systemic disease that frequently and dramatically limits the activities of…
Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding…
Il y a tellement d’informations qui circulent maintenant grâce à l’internet que ça peut être difficile de s’y retrouver. C’est pourquoi notre comité scientifique effectue la vigie des parutions tout au long de l’année, et que nous restons toujours à l’affût des nouvelles concernant l’encéphalomyélite myalgique... This post first appeared…
Petition: Fund research into any relationship between microclots & long Covid & ME A private petition to the UK Government highlights apparent similarities between long COVID and ME/CFS, and requests research, not just support, into diagnosis, treatment and protocols for both conditions... News | WAMES (Working for ME in Wales)…
January 21, 2022 In September 2021 we announced our decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders of both charities.… This post first appeared on action for M.E. Read more >>
January 20, 2022 We were honoured to see Scottish actor Mark Bonnar appear on ITV’s popular game show Celebrity Catchphrase playing for Action for M.E last weekend. Mark is known for his roles as Max… This post first appeared on Action for M.E. Read more >>
#MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular…
What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms. It’s no exaggeration to say that 2020 and 2021 changed the world –…
Neuro Voices Wales – Support Groups The Wales Neurological Alliance invites anyone with a neurological condition, including ME & FM, to attend one of the new neuro support groups... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
Last year was, by all accounts, a doozy. The nation endured a spate of tornadoes, fires, floods and, of course… News and Research – American ME and CFS Society Read More