Be part of the World ME Day 2024 campaign film

As we approach World ME Day 2024, we invite you to be a part of a new short film that aims to shed light on the reality of Myalgic Encephalomyelitis (ME). The World Health Organization recognized ME 55 years ago, yet any treatment remains elusive, and millions more are now…

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Mirame Arts joins the World ME Alliance as our first member in Germany

The World ME Alliance is thrilled to announce that Mirame Arts e.V., a dedicated non-profit organisation from Germany, has joined our ranks as a member. Mirame Arts have been working with us for a while as a project partner supporting the development of plans for World ME Day 2024, and…

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Registration for 1st International Conference on ME/CFS and Long COVID in Portugal Opens

The World ME Alliance is proud to endorse the upcoming 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, set to take place on April 3 and 4, 2024, in Lisbon. This groundbreaking event aims to bring together healthcare professionals, investigators, policymakers, patients, and community representatives…

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A #GlobalVoiceForME: World ME Day 2024 theme announced

In recognition of World ME Day on May 12th 2024, our global community comes together to raise awareness about the pressing issues surrounding Myalgic Encephalomyelitis (ME). This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health crisis. …

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Emerge Australia joins the World ME Alliance: Pioneering Global Partnerships for ME/CFS

In a move that underscores their commitment to championing the cause of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID on an international scale, Emerge Australia has joined the World ME Alliance. Emerge Australia's impressive work has earned them recognition and trust as the leading national patient organisation for ME/CFS…

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Portugal’s first international conference on Clinical and Scientific Advances in ME/CFS/Post-COVID

Date: 3rd-4th April 2024 Location: FLAD Luso American Development Foundation, Lisbon This event, the first in Portugal, will gath- er leading scientists, clinicians, and inter- national experts to share and discuss the latest biomedical evidence and findings on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and the nexus between Long…

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32 organizations call for future pandemic preparedness to address infection-associated chronic conditions

Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…

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Introducing MYOS: Portugal’s Leading ME and Fibromyalgia Charity

We are excited to welcome MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) as the newest member of the World ME Alliance and the first organisation from Portugal to join our global effort. Established in 2003, MYOS has been a driving force in supporting individuals with Myalgic…

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Standing Strong: Global ME Community unified in support of NICE 2021 ME/CFS Guideline

Leaders in the ME community from across the globe joined in writing a rapid response to the July 2023 article titled "Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis." The World ME Alliance is deeply disappointed that…

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#EndMalnutritionInME – Severe ME Day 2023

August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often overlooked and challenging aspect of accessing appropriate dietary support for individuals battling severe ME. Severe ME…

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