We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME in this important international setting. Founded in 2018 by a group of patients and carers, they have engaged thousands as…
Member The European ME Coalition (EMEC) is was founded in 2018 by a group of patients with a strong desire to improve the lives of people with ME in Europe and further afield. Through an EU wide petition they have advanced understanding of ME within the European Parliament, leading to…
As part of the World ME Alliance we want to use World ME Day to reach out to health professionals on a personal basis, to help them build an understanding of ME, so we can take another step towards a world that understands ME. WAMES is proud to be a…
L’AQEM est fière d’avoir collaboré à un article exposant le lien entre l’encéphalomyélite myalgique et la COVID longue durée, paru dans le journal Montreal Gazette le 3 avril 2022... AQEM is proud to have collaborated on an article exposing the link between myalgic encephalomyelitis and long-term COVID, published in the Montreal…
This week, Solve M.E. invited members of the press to a special event announcing the release of our new whitepaper, Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost. "We co-authored this whitepaper to fill a void; to provide a preliminary analysis of a looming public health…
ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical approaches to the illness (and to maladies in general). The community sought to re-appropriate the discourse, fight against stigma and…
Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships. Loneliness can be difficult to discuss as contemplating our own loneliness and need for connection can make us feel very vulnerable. Loneliness is certainly not unique to ME but…
Long Haul Voices: Living with Long Covid and ME/CFS Solve M.E. is excited to announce the production of Long Haul Voices, a mini-series created in partnership with Unfixed Media Productions that... This post appeared first on Solve ME/CFS Initiative. Read More
David Tuller’s spring fundraiser is now live! Tuller has been tireless in his battle against the GET/CBT ideological onslaught! He … News and Research – American ME and CFS Society Read More
This May 12th, the World ME Alliance is launching the first World ME Day, and we’re asking “what can the world #LearnFromME?” We know that for far too long stigma has impacted the care people with ME receive, and has led to a global lack of funding for research into…