The World ME Alliance is excited to announce the inclusion of our newest member organization, ABEMDIS - Brazilian Association for Myalgic Encephalomyelitis and Dysautonomia. This vibrant, committed organization grew from a union of ME/CFS and dysautonomia patients, who were experiencing the same challenges imposed by government, general and medical society.…
ABEMDIS - Brazilian Association for Myalgic Encephalomyelitis and Dysautonomia is a dedicated organization committed to advocating for individuals affected by ME/CFS and Dysautonomia in Brazil. ABEMDIS has grown from and informal collective into a formal organization with a important mission: to raise awareness of and offer mutual support to people…
Aliança Millions Missing brings together ME/CFS groups and individuals from Portugal, Brazil and other Portuguese-speaking communities. They are a registered non-profit association in Portugal, committed to raising awareness about Myalgic Encephalomyelitis (ME) and advocating for individuals affected by this chronic illness. As part of an international movement, Aliança Millions Missing …
The World ME Alliance is thrilled to welcome our newest member organization, Aliança Millions Missing, a collective of Portuguese speaking advocates dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and campaigning for those affected by this debilitating illness. This addition marks a significant milestone as we expand our global reach…
We are reporting on the advocacy, actions, campaigns and events of our member organizations and others across the globe for World ME Day 2024. Brilliant initiatives were held to make a difference on a local and global scale. Demonstrations, lobbying, art and education events were organized across six continents! Learn…
Name: Priscilla FalcãoPronouns: she/herAge: 46Home: Salvador, BrazilSick for: 7 years I’ve always had a very fragile immune system, so my illness is probably post-viral. I feel like I only have 10-20% of the energy capacity I had before I got sick. If doctors were trained to deal with ME/CFS, I…
Name: Marya FerreiraAge: 52Pronouns: she/herHome: Cabo de Santo Agostinho, Pernambuco, BrasilSick for: 22 years I went to bed feeling fine and woke up with the flu - high fever, runny nose, nasal congestion, body aches, sneezing, inflamed throat.... Two months later, I woke up as if the flu had never…
Name: Ivana Andrade Age: 34 Pronouns: she/her Home: São Paulo, Brazil Sick for: 10 years I've always felt more tired than other people, but was led to believe for many years that this was laziness or depression. At some point in my life I had mononucleosis but we don't know…