Hospital Mistreatment of Severe ME Patients Globally – #SevereMEDay 2024

This Severe ME Day, 8th August, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma, denial of evidence-based science, disdain and dismissal of symptoms by healthcare providers. Yet for those with Severe ME requiring hospital…

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Across the globe for World ME Day 2024

We are reporting on the advocacy, actions, campaigns and events of our member organizations and others across the globe for World ME Day 2024. Brilliant initiatives were held to make a difference on a local and global scale. Demonstrations, lobbying, art and education events were organized across six continents! Learn…

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“I am the care provider of myself” – Dr Shafiq, Pakistan

Name: Dr Muhammad ShafiqAge: 62.5Pronouns: he/himHome: Lahore, PakistanSick for: about 50 years I was born in a small town in Pakistan. I think my illness was triggered by influenza and compounded by adverse childhood experiences. I managed to complete my medical studies when I was mild to moderately affected (at…

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“People have no idea what Severe ME is like” – Nevra, Pakistan

Name: Nevra Elis Ahmed Pronouns: she/her Age: 28 Home: Karachi, Pakistan How many years sick?: 22 Nevra had to abandon answering questions because it exhausted her too much. Her story was instead compiled from Whatsapp conversations over the course of a few weeks before and after she had to move…

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