Around the world, individuals, organisations and communities are coming together in to mark World ME Day 2025. Below is a breakdown of national events and campaigns happening by country, highlighting the wide range of efforts to raise awareness, push for better care, and demand action for people living with Myalgic…
This World ME Day, on May 12th, communities around the globe are coming together to raise awareness, demand change, and support people living with Myalgic Encephalomyelitis (ME). From international conferences and grassroots activism to creative awareness-raising campaigns and vital educational tools, here’s a roundup of just some of what’s happening…
Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment. Below, we debunk six of the most common myths about ME and share the medical facts everyone should know. Read…
We are reporting on the advocacy, actions, campaigns and events of our member organizations and others across the globe for World ME Day 2024. Brilliant initiatives were held to make a difference on a local and global scale. Demonstrations, lobbying, art and education events were organized across six continents! Learn…
Name: Cynthia AdinigPronouns: she/herAge: 38Home: Alexandria, VA, USASick for: 4 years In March 2020 my family and I got a Covid infection so mild we were denied access to a Covid test. But on Mothers Day, May 10th 2020, my life changed forever when I had the first incident that…
On May 10th we'll joining with advocates across the world to showcase the committed work of non-profit organisations, all building a #GlobalVoiceForME. Find out who is speaking and the range of topics they are covering! Register to watch on Zoom RSVP to watch on Facebook Speakers Mlindeni Gabela and Sam…
Name: Priscilla FalcãoPronouns: she/herAge: 46Home: Salvador, BrazilSick for: 7 years I’ve always had a very fragile immune system, so my illness is probably post-viral. I feel like I only have 10-20% of the energy capacity I had before I got sick. If doctors were trained to deal with ME/CFS, I…
Name: MaxPronouns: he/himAge: 36Home: Lviv, UkraineSick for: 18 years Back in 2006 I was a perfectly healthy, vibrant 2nd year University student studying molecular physics in Kyiv, Ukraine. I caught pneumonia and first thought nothing of it, but later had to spend 2 weeks in hospital to recover. I was…
Name: Una Alexia KarlsenPronouns: she/herAge: 42Home: Cape Town, South AfricaSick for: 20 years (Content warning: medically assisted dying) In 2020, during the Cape Town Pride parade, I collapsed, just half a block from the start. If I tried to stand up I would become dizzy, my heart rate would shoot…
Name: Marya FerreiraAge: 52Pronouns: she/herHome: Cabo de Santo Agostinho, Pernambuco, BrasilSick for: 22 years I went to bed feeling fine and woke up with the flu - high fever, runny nose, nasal congestion, body aches, sneezing, inflamed throat.... Two months later, I woke up as if the flu had never…