Be part of the World ME Day 2024 campaign film

As we approach World ME Day 2024, we invite you to be a part of a new short film that aims to shed light on the reality of Myalgic Encephalomyelitis (ME). The World Health Organization recognized ME 55 years ago, yet any treatment remains elusive, and millions more are now…

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Mirame Arts joins the World ME Alliance as our first member in Germany

The World ME Alliance is thrilled to announce that Mirame Arts e.V., a dedicated non-profit organisation from Germany, has joined our ranks as a member. Mirame Arts have been working with us for a while as a project partner supporting the development of plans for World ME Day 2024, and…

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Mirame Arts

Mirame Arts is dedicated to improving the lives of ME patients through creative and innovative solutions. They recognize the interconnectedness of educational opportunities, workforce participation, and social policy with ME, particularly noting the impact of COVID-19. Their approach is to uncover and use the hidden connections. They understand that problems…

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Registration for 1st International Conference on ME/CFS and Long COVID in Portugal Opens

The World ME Alliance is proud to endorse the upcoming 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, set to take place on April 3 and 4, 2024, in Lisbon. This groundbreaking event aims to bring together healthcare professionals, investigators, policymakers, patients, and community representatives…

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A #GlobalVoiceForME: World ME Day 2024 theme announced

In recognition of World ME Day on May 12th 2024, our global community comes together to raise awareness about the pressing issues surrounding Myalgic Encephalomyelitis (ME). This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health crisis. …

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Emerge Australia joins the World ME Alliance: Pioneering Global Partnerships for ME/CFS

In a move that underscores their commitment to championing the cause of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID on an international scale, Emerge Australia has joined the World ME Alliance. Emerge Australia's impressive work has earned them recognition and trust as the leading national patient organisation for ME/CFS…

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Emerge Australia

Member Emerge Australia's impressive work has earned them recognition and trust as the leading national patient organisation for ME/CFS in Australia. With a dedicated focus on improving the lives of individuals grappling with these conditions, Emerge Australia provides comprehensive support and information. Their innovative telehealth support service empowers individuals and…

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Portugal’s first international conference on Clinical and Scientific Advances in ME/CFS/Post-COVID

Date: 3rd-4th April 2024 Location: FLAD Luso American Development Foundation, Lisbon This event, the first in Portugal, will gath- er leading scientists, clinicians, and inter- national experts to share and discuss the latest biomedical evidence and findings on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and the nexus between Long…

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32 organizations call for future pandemic preparedness to address infection-associated chronic conditions

Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…

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MYOS

Member MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) is a trailblazing organisation in Portugal that has been championing the cause of Myalgic Encephalomyelitis (ME) and Fibromyalgia since its establishment in 2003. With a focus on equality and support for both patient groups, MYOS was founded by…

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