Around the world, individuals, organisations and communities are coming together in to mark World ME Day 2025. Below is a breakdown of national events and campaigns happening by country, highlighting the wide range of efforts to raise awareness, push for better care, and demand action for people living with Myalgic…
This World ME Day, on May 12th, communities around the globe are coming together to raise awareness, demand change, and support people living with Myalgic Encephalomyelitis (ME). From international conferences and grassroots activism to creative awareness-raising campaigns and vital educational tools, here’s a roundup of just some of what’s happening…
Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment. Below, we debunk six of the most common myths about ME and share the medical facts everyone should know. Read…
This Severe ME Day, 8th August, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma, denial of evidence-based science, disdain and dismissal of symptoms by healthcare providers. Yet for those with Severe ME requiring hospital…
Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME). This day is dedicated to shedding light on the experience of people with the most severe forms of ME enduring a…
We are delighted to announce the establishment of the Strategic Leadership Board for the World ME Alliance. This initiative marks a significant step forward in our mission to combat myalgic encephalomyelitis (ME) on a global scale. The aim of this board is to promote an efficient and dynamic decision-making process…
Aliança Millions Missing brings together ME/CFS groups and individuals from Portugal & Brazil and other Portuguese-speaking communities. They are a dedicated collective, committed to raising awareness about Myalgic Encephalomyelitis (ME) and advocating for individuals affected by this chronic illness. As part of an international movement, Aliança Millions Missing works to…
The World ME Alliance is thrilled to welcome our newest member organization, Aliança Millions Missing, a collective of Portuguese speaking advocates dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and campaigning for those affected by this debilitating illness. This addition marks a significant milestone as we expand our global reach…
We are reporting on the advocacy, actions, campaigns and events of our member organizations and others across the globe for World ME Day 2024. Brilliant initiatives were held to make a difference on a local and global scale. Demonstrations, lobbying, art and education events were organized across six continents! Learn…
Name: Cynthia AdinigPronouns: she/herAge: 38Home: Alexandria, VA, USASick for: 4 years In March 2020 my family and I got a Covid infection so mild we were denied access to a Covid test. But on Mothers Day, May 10th 2020, my life changed forever when I had the first incident that…