This Severe ME Day, 8th August, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma, denial of evidence-based science, disdain and dismissal of symptoms by healthcare providers. Yet for those with Severe ME requiring hospital…
We are reporting on the advocacy, actions, campaigns and events of our member organizations and others across the globe for World ME Day 2024. Brilliant initiatives were held to make a difference on a local and global scale. Demonstrations, lobbying, art and education events were organized across six continents! Learn…
Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…
With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we build a stronger ME community together. Millions Missing France was founded in 2018, and has since grown to become a…
Member Millions Missing France is a voluntary, non-hierarchical organisation based in Auvergne. The team behind this organisation advocate for people with ME across France. Founded in 2018 they are led by a college of six members all of whom have personal experience of ME. This personal experience, including experience of…
#MillionsMissing France has been busy. This month, in tandem with Adapted Physical Activity Expert Gilles Thöni, the association addressed the French National Authority for Health (HAS) requesting, as they have since 2020, that the HAS focus of aspects of their diagnostics policy on Post-Exertional Malaise (PEM), a hallmark symptom for…