What is the Sunflower? The Sunflower is a globally recognised symbol for non-visible disabilities, also known as hidden disabilities or invisible disabilities. People living with these often face barriers... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
At the World ME Alliance we have revised our Memorandum of Understanding (MoU) and are pleased to share this with you. This new MoU sets in place what we expect from our member organisations and will support us as we develop a larger grouping of organisations that can advocate together…
The Annual General Meeting (AGM) of the UK All-Parliamentary Party Group (APPG) on M.E. has been set for Tuesday 29 March 10:00 – 10:30 via Zoom. As always, we’re encouraging you to invite… This post appeared first on Action for M.E. Read more >>
Despite the devastating impact of M.E., understanding of the disease is still woeful. While at least 250,000 people live with M.E., and even more experiencing overlapping symptoms with… This post appeared first on Action for M.E. Read more >>
Qu’est-ce qu’un patient partenaire? Le patient partenaire est une personne dont le vécu et les savoirs avec la maladie sont reconnus par son équipe médicale, dont il fait partie intégrante. Ses compétences d’autosoins sont ainsi développées en partenariat avec l’équipe traitante pour favoriser l’autonomie et la prise de décisions éclairées…
Welcome to our second Facets of ME! This is an educational feature in which we choose one aspect of ME to dive into and explore more in-depth once a month. Our goal is to keep it understandable while still providing a great overview and links to even more detailed information. …
By Emily Taylor, Vice President of Advocacy and Community Engagement, Solve M.E. This essay was originally published as a blog for Cumberland Advisors Market Commentary “I just got a virus... This post appeared first on Solve ME/CFS Initiative. Read More
“THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL REPRESENTATIONS OF ME/CFS by Giada Da Ros Sociologists emphasize the importance of social and cultural representation of social and cultural representation of chronic and emerging disease, both for individual and collective behavior. “(T)he fact that people are able to…
The following speech was delivered by Solve M.E. Board Member and person with Long Covid, Cynthia Adinig, during a Covid-19 memorial event hosted by Rami’s Heart Memorial and COVID-19 Hope... This post appeared first on Solve ME/CFS Initiative. Read More
As our team at Solve M.E. continues to make breakthroughs possible in research into ME/CFS, Long Covid, and other post-infection diseases, we also stand firm in our commitment to ensuring... This post appeared first on Solve ME/CFS Initiative. Read More