COVID-19: to vaccinate or not to vaccinate: advice for people with ME/CFS in New Zealand

The New Zealand government mandate stipulates that certain industries require vaccination in order to retain employment. Although we have advised MoH that this is not as simple for those people with ME/CFS (pwME) who are affected by this Order, we have not been able to change their decision through our…

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La Fibromiàlgia, la Síndrome de Fatiga Crònica i la SQM seran presents als Pressupostos Generals de l’Estat 2022

We asked all the parliamentary groups of the Congress of Deputies that in the General Budgets of the State 2022 there should be two budget items: To carry out an institutional campaign from the state aimed at the general public to seek normalization of fibromyalgia, chronic fatigue syndrome and sensitivity……

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#MEAction Swimming Through the Research Lagoon

Hi, everyone! It’s Jaime, the Director of Scientific & Medical Outreach at #MEAction. During this week’s #MEAction Giving Adventure we swam through the Research Lagoon as we surpassed our second fundraising level of US $20,000/UK£14,820. While our fundraising format this year is fun and lighthearted, the work #MEAction is doing…

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Join over 1,000 people and vote for your ME/CFS research priorities

Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians in the UK are all asked to take part. The ME/CFS Priority Setting Partnership is particularly looking for more people from ethnic minorities, carers and health care professionals to take part. So far:…

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Chat to NICE ME/CFS guideline committee members

On Tuesday 30th November at 5pm, #MEAction UK are holding a community Q&A, and will be joined by two of the NICE committee members who have spent almost 3 years working on the new ME/CFS guideline. The post Chat to NICE ME/CFS guideline committee members appeared first on #MEAction Network.…

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My Neuro survey 2021 – take part now

My Neuro survey 2021 People living with neurological conditions across the UK are being asked to take part in the largest neurological survey to help improve vital services and support. Anybody, of any age, with a neurological condition or suspected neurological condition in England, Scotland, Wales and Northern Ireland can…

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