After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…
This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the joy so many in our community still find, facts and figures about ME, and nuggets of wisdom or knowledge that…
We know there isn't enough research into ME happening around the world, but there is some and we're highlighting a few projects you might be able participate in. All of our member organisations are working to increase the amount of research happening into ME, and this will continue to be…
It's almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the UK and more. Keep on reading to see how the power of collaboration is spreading World ME Day across continents.…
There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, we have released a series of actions to help you make an impact. Are you going to take action and help the world #LearnFromME? If so,…
The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out for themselves as other parts of society have not. But it is also one of our greatest strengths. Showing…
We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME in this important international setting. Founded in 2018 by a group of patients and carers, they have engaged thousands as…
This May 12th, the World ME Alliance is launching the first World ME Day, and we’re asking “what can the world #LearnFromME?” We know that for far too long stigma has impacted the care people with ME receive, and has led to a global lack of funding for research into…
ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this disease cannot be overstated. But there is much to be learnt from this disease…
As we extend our reach across the globe, we are pleased to have one of the foremost ME organisation in Northern Ireland joining us. Hope 4 ME & Fibro Northern Ireland have an impressive track record in their country over the past decade, and we look forward to seeing how…