We are excited to welcome MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) as the newest member of the World ME Alliance and the first organisation from Portugal to join our global effort. Established in 2003, MYOS has been a driving force in supporting individuals with Myalgic…
Leaders in the ME community from across the globe joined in writing a rapid response to the July 2023 article titled "Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis." The World ME Alliance is deeply disappointed that…
August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often overlooked and challenging aspect of accessing appropriate dietary support for individuals battling severe ME. Severe ME…
From 2022 to 2023 the World ME Alliance grew from 13 member organisations to 21. We are pleased to share with you the World ME Alliance's Annual Report for 2022-2023. In it, we explore the aims of our Alliance and how we are working to achieve these. Through looking back…
On 11th July, a new article was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts these suggestions. Our 24 member organisations are coordinating a global response to this study to demonstrate, on…
We are delighted to announce that the World ME Alliance has expanded its new resource, "Involving people with ME and energy limiting conditions" to include German and Italian translations, alongside the original English and French versions. This comprehensive guide is designed to promote the involvement of individuals who have Myalgic…
The World ME Alliance, a global coalition of organisations advocating for those affected by Myalgic Encephalomyelitis (ME), is proud to announce the release of a new guide. This comprehensive resource, titled "Involving People with ME and Other Energy Limiting Conditions," aims to promote inclusivity and empower individuals facing these debilitating…
Member ME/CFS Israel is a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Israel. They grew organically through social media, building community among people with ME and recognising the opportunity for collective action. With a high-quality website and growing partnerships within…
ME/CFS Israel, a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), has achieved remarkable milestones within just a year since its foundation. As the newest member of the World ME Alliance, ME/CFS Israel has made significant strides in combatting misinformation, fostering relationships…
Member Neúnavní is a charity supporting individuals with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neúnavní provides crucial support services, through free therapy to support individuals learning to live with the disease and monthly community calls. They also work to raise awareness about ME, to dispel myths and promote understanding.…